UCSF

No, I really haven’t fallen off the face of the earth. Between exams, papers I should be writing (but haven’t completed), the As in and out of time and family “stuff” I really let communications slip. So, update time.

I survived my exams – at least those which have been graded to this point. I still have two papers to finish. One is drafted and just needs to be cleaned up, the other has all the research completed but other wise a lot of writing remains.

Which takes me on to the family issues. No problems with any of the offspring (I was going to say kids-  but with an age range of 26-40 they are not exactly small children). OTOH – there is George who first started to feel lousy probably last summer and finally decided he needed to see someone right after Thanksgiving. That week  was “interesting,” with his doc’s original “not to worry” turned into “get back here for more tests.” End result was that he had a number of tests at UCSF resulting in a diagnosis of myleodysplasia  (which I have linked to Wiki for you and there is also this information ). He has a form which is likely to progress, so plans were made to head toward a stem cell transplant (which you may have first heard called a bone marrow transplant).

Unlike in previous years, there is no longer a need to stick huge needles into the bone marrow donor and withdraw marrow. Instead stem cells can be harvested similar to the process which is used for a number of other blood cell product collections. The four got HLA typed – not surprisingly, none was a match. From their results, I was able to back calculate my type – George and I have zero overlap. But he got lucky, there are a couple of donors in the international registry who do match. So, we spent Jan-April with frequent visits to UCSF and the more than occasional blood transfusion. His original admission date for transplant of 1 May was pushed back to yesterday secondary to a donor change.

Yesterday was admission day and start of chemo to wipe out his marrow and immune system prior to the transplant. The staff is excellent; this is one of the premier national centers which is why we are here rather than the more convenient East Bay medical facilities. Thanks to the generosity of a friend, I am going to be staying at her house just a few kilometers from the hospital for the next week, eliminating the hour + commute to our house.

Today is D-6 as the count down continues. He is in good humor, especially considering that the one thing you never get in a hospital is uninterrupted sleep. I will keep you posted. For now he is answering his email, I expect that sometime in the next couple of weeks his energy level will drop, but one never knows.

 

About Holly

fiber person - knitter, spinner, weaver who spent 33 years being a military officer to fund the above. And home. And family. Sewing and quilting projects are also in the stash. After living again in Heidelberg after retiring (finally) from the U.S. Army May 2011, we moved to the US ~ Dec 2015. Something about being over 65 and access to health care. It also might have had to do with finding a buyer for our house. Allegedly this will provide me a home base in the same country as our four adult children, all of whom I adore, so that I can drive them totally insane. Considerations of time to knit down the stash…(right, and if you believe that…) and spin and .... There is now actually enough time to do a bit of consulting, editing. Even more amazing - we have only one household again. As long as everyone understands that I still, 40 years into our marriage, don't do kitchens or bathrooms. For that matter, not being a golden retriever, I don't do slippers or newspapers either. I don’t miss either the military or full-time clinical practice. Limiting my public health/travel med/consulting and lecturing to “when I feel like it” has let me happily spend my pension cruising, stash enhancing (oops), arguing with the DH about where we are going to travel next and book buying. Life is good!
This entry was posted in family. Bookmark the permalink.

2 Responses to UCSF

  1. Ron Hansen says:

    Holly,

    My deepest sympathies. Please tell George we’re rooting for him.

    Ron

Leave a Reply

Your email address will not be published. Required fields are marked *

This site uses Akismet to reduce spam. Learn how your comment data is processed.