I heard in no uncertain terms last night from Zandra that there are those who get worried when they don’t hear from me for a couple of days. There are those who stop by every few days and read, but, as I should have recalled – 19 years of sending out email means that people get used to me supplying news without having to go look for it.
So mea culpa. I have been posting on the blog. It has mostly been about the As this week since there were games Mon-Thurs with the series split 2:2. None of which made getting up this morning and catching the early BART and shuttle to the VA any easier. The plan was blood work, but I really appreciate my nurse. When she asked me how I was doing, I had to answer honestly – crappy since Monday. The previous two cycles I was on the way up after getting off the flicking prednisone which meant I could blame it for everything. This time not so much. It wasn’t the fatigue (ok, the fatigue didn’t help) it was more the issues with getting short of breath climbing a flight of stairs. Feeling dizzy really didn’t help either. Spent a lovely discussion with the most excellent nurse practitioner who confirmed that exam wise I was ok and not chemically out of whack.
My white count was another matter. I had skipped the neutrophil stimulator this time in hopes of avoiding headaches. Wound up finding that headaches are much better than having essentially no white cells. I am the queen of hand sanitizer. I hate wearing a mask in public but don’t see avoiding it as an option. And, I get to take five self-injectors along in a really cool lunch bag to try to boost my immune system over the next few days.
Did I mention that I am headed for LA in the morning? And not going to get together with anyone (wahhhhh) to avoid picking up colds, flus and community acquired anything? Noah is going with me. Planning on a quiet day after early arrival.
Any how, George made it safely back before the weather closed in again. Then he was delayed getting out of the airport which meant that I wound up taking it all out on him. Morning at the VA. Hour of bumpy bus ride, catching the BART to find out when I got to North Berkeley more than 100 minutes after I had left the VA and he had landed that he was just getting on BART. Something about charging his phone and a conference call. All his fault – he is supposed to read my mind. Right?
Right, I missed the baseball posts – but then I know nothing about baseball so…
You sound as if you need a hug – the best I can do is a sisterly virtual hug from afar.
And yes, it does worry me when I don’t hear from you but I am trying not to bug you too.
bug away. It is fine. Got the hug from everyone here. Always a lot of fun when you are telling them to not breath on you…
I am glad that you will be wearing a mask. There is a lot of stuff going around down here.
Zandra did people like me a favor. Silence always a concern.
Glad for the update. Not so glad about the details.
Hang in there (like you have a choice).
Must be difficult to be an icon.
Seriously, take care, stay strong.
Icon? Not in this lifetime! There are always choices – and I don’t like any of them!
I understand blaming everything on Prednisone. I guess the migraine is better than no WBCs… But it’s a tough one. Where are
Some of us just worry about you. Sorry but we can’t seem to help it.
and trust me, the concern and phone call were just what I needed. Focused out, rather than whining!
Absolutely he should be able to read your mind!!! Sorry
that you are having the medical problems you are slugging
through. Do you have to go to LA? Can it be put of till
you are less immunocompromised? At least I’m glad to
hear Noah is going with you. Get well friend,
And let the Jewel leave without me? Noah is on school break and took off work. If we don’t go this week we don’t go. I don’t mind complaining, but feeling lousy enough to whine is so not fun
Ah the “Jewel” that explains the LA trip, glad your son will be going with you,
Reading minds, like any other science, has a downside too. Occasionally the reader may run out of material to work with. Hang in there and follow those medical instructions . . . or the suggestions you can agree with.
We’re keeping you in our prayers.
the excuse is chemo brain…. covers all the empty spaces…
Greetings from Neunkirchen !
They way you are explaining the side effects of your medication sound almost exactly like the ones a family member is enduring. Always tired and dizzy. I hope it will go away and you feel better.
Sorry you are feeling crappy…
Sorry to hear you don’t feel well. Nothing easy about serious treatment. I’m glad you had a good nurse.
Hang in there.